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  • Our Team | Long Covid Kids

    The Long Covid Kids Team Michael Rosen Patron Michael Rosen is one of Britain’s best loved writers and performance poets for children and adults and has personally been affected by Long Covid. He is currently Professor of Children’s Literature at Goldsmiths University, London and has taught on MA courses in universities since 1994. He was the Children’s Laureate from 2007-2009 and has published over 200 books for children and adults. More About Michael Sarah Miller Chair Trustee Sarah has worked in the charity sector for over 25 years, mainly in fundraising and marketing. She is a busy mum to 3 teenagers, balancing work, home education and caring. Two of her children are living with ME., & her youngest son has suspected Long Covid. Sarah decided to take up the role of Chair trustee to utilise her professional and personal experiences to make a difference to families, children & young people affected by Long Covid. Contact Sarah Susie Goulding LCK Representative for Canada Susie runs Canada's largest Long Covid advocacy group.. Covid Long-Haulers Support Group Canada. Contact Susie Sammie Mcfarland CEO & Founder Sammie Mcfarland is a Wellbeing Coach & Entrepreneur. She is a 'long hauler' and the visionary behind Long Covid Kids. A passionate advocate for proactive holistic health. Her lived experience, determined-spirit, and attitude motivate her to be a strong voice for children with Long Covid. She has a special interest in reducing the impact of chronic long-term health on children. Contact Sammie Helen Goss LCK Representative for Scotland, & Trustee Helen lives in NE Scotland with her partner and 8 year old daughter who is suffering from Long Covid since the first wave. She has a background in media planning and has undertaken various roles with the Pregnancy Sickness Support charity over the past 8 years. Helen is keen to ensure that all families in the UK have appropriate access to paediatric Long Covid care. Contact Helen Kirsty Stanley Occupational Therapist Kirsty has been an OT for over 20 years, after training at St. Loyes School of Occupational Therapy in Exeter. She has worked in the NHS, as a lecturer, and is now an Independent Practitioner working with people of all ages. Kirsty is passionate about social justice and uses her lived experience of disability alongside her professional experience in Multiple Sclerosis, fatigue management and work support, to help others with Long Covid to lead fulfilling lives despite the health challenges they face. Contact Kirsty Frances Simpson Founder & Trustee Frances Simpson is a lecturer in Psychology and Counselling at Coventry University (SC.) She is also a sufferer of Long Covid and a founder member of the campaign group LongCovidSOS. Fran has a special interest in the neurological impact of COVID infection on children. She has two children with Long Covid. Contact Frances Sarah O Connell LCK Representative for Ireland Sarah and her daughter suffer from post viral ME/Chronic Fatigue Syndrome. She has a BA in Psychology and MA in Psychoanalytic Theory. Sarah has seen first hand the devastation caused by post viral illness. She is passionate about fighting for proper recognition and services for those with post viral illnesses. She is eager to fight for adequate care for the huge number of families effected by Long Covid. Contact Sarah Tabitha Gavin Tabitha joined LCK to support with administration tasks. She has a background in education and currently works as an administrator at a UK university. Her interest in supporting the charity comes from having a CEV son who shielded in the first wave. Contact Tabitha Nathalie Pearson Founder & COO Nathalie Pearson joined Sammie and Fran shortly after Long Covid Kids came to be. Dedicated to promotion of health and wellbeing, she has two Bachelor of Science degrees and a special interest in research. Nathalie has been a determined advocate for children, NHS and school staff since the pandemic began to unfold and has experienced personal loss during COVID-19. Contact Nathalie Melissa Lynch LCK Representative for USA Melissa is from North Carolina, a CMA, RMA with 26 years experience., She has been leading paediatric advocacy within the USA at state & federal level to give a voice to children with post viral conditions. Melissa has 4 children, her 12 year old daughter has Post Acute Covid Syndrome & is the motivation behind Melissa's passion to see change within the education and healthcare. Contact

  • Useful Links | Long Covid Kids

    Useful Links Download LCK Awareness Pack Sunday newsletter Nothing is yet certain with Long Covid. Medical research and understanding is in its infancy. See the research and The Long Covid Kids Study sections on our website for more information. While we wait for research there is so much we can learn from other chronic inflammatory conditions. Long Covid is a multi-systemic condition that requires a holistic approach to treatment. We hope that current research will benefit children across all communities with chronic long term conditions, many of whom have been campaigning for years. This page has links to websites we have found helpful. POTS UK Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating health condition. Read more SCOTTISH INTERCOLLEGIATE GUIDELINES NETWORK A booklet for people who have signs and symptoms that continue or develop after acute COVID-19 Read more ME ASSOCIATION Provides information, support and practical advice for people, families and carers affected by M.E. (Myalgic Encephalopathy), Chronic Fatigue Syndrome (CFS) and Post Viral Fatigue Syndrome (PVFS) Read more LONG COVID PHYSIO Founded November 2020 by Physiotherapists living with Long COVID. Resources and advice on exercise and pacing. Read more LONG COVID SUPPORT Long Covid Support was formed by a group of people struggling to recover from Covid-19, who found each other online and have been facilitating international peer support and campaigning in the UK for recognition, rehabilitation and research into treatments since May 2020 Read more MASTCELL ACTION MCAS is part of a spectrum of mast cell disorders involving proliferation and/or excessive sensitivity of mast cells. MCAS causes a wide range of symptoms in any of the different systems of the body, frequently affecting several systems at the same time. Read more ABSENT The Sense of Smell Project (SoSP) is a collaboration between patients with smell disorders and scientists. Read more LONG COVID SOS Recognition - Research Rehab Read more BRITISH HEART FOUNDATION The website features a coronavirus support hub with lots of helpful information. It also includes what Covid-19 means for you if you have a heart or circulatory condition Read more DEPARTMENT OF WORK & PENSIONS Medical guidance for DLA decision makers (child cases): staff guide Read more PANS/PANDAS PANS is a neuropsychiatric condition triggered by a misdirected immune response resulting in inflammation of a child's brain. Read more NATURE DOC Integrated functional medicine supporting the body from the inside out Read more ZERO COVID ALLIANCE Zero Covid Alliance focuses on gathering all the COVID community efforts across the globe, create new ones by providing accessible information based on the circumstances in the area, and empower the general public in making informed, health-conscious decisions. Read more DYSAUTONOMIA Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System Read more NHS LONG COVID Advice on managing lingering symptoms of Coronavirus from the NHS Long Covid Library and Knowledge Services Read more NSPCC Coronavirus (COVID-19) advice and support for parents and carers Whether you're working from home with your kids for the first time or supporting children with anxiety due to coronavirus, we've got tips and Read more

  • News | Long Covid Kids

    Long Covid Kids In The News

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